Philae Pharma

OUR GOAL: Provide a Much-Needed Treatment for The Worst Disease You’ve Never Heard Of

Patients with Epidermolysis Bullosa (EB) are known as Butterfly Children, because their skin is as vulnerable as the wings of a butterfly. Even the slightest contact or friction can easily tear or blister their skin, leaving painful wounds. Internal organs and systems can also be affected. Constant pain, disfigurement, disability and early death are all possible outcomes. Though EB is known as “The Worst Disease You’ve Never Heard Of™”, there is currently no cure or treatment. But we want to change that.